hi sweet baby=)
the trip to charlottesville was great! we had the best time seeing your old friends. they all kept saying how big you were (you weighed 15 pounds 2 ounces!!!) and that you looked great. mommies and daddies love to hear that sort of thing=) you were showing off big-time, talking and smiling and revealing all the new things you've learned in the past 3 months. we took you to chipotle where daddy and i used to eat a lot-i can't wait till you're a big girl and we can go back to all these places. i think you will have fun learning about where you lived for 4 months and what mommy and daddy did waiting for you to get well enough to come home and live with us. dr rodgers loved seeing you=) he is great. i think we've told you that a few times before. you had an upper gi series (they put barium down your ng tube and then take several x-rays in sequence to see where it goes) and it showed that you were still refluxing (which was not a surprise at all) and also that your stomach emptied really REALLY slowly. we didn't really know that yet but i guess it makes sense, right? so anyway we all agreed let's do this. dr rodgers scheduled your surgery for this tuesday. we were really thankful he was able to do it so soon and get it over with. we know it's no fun for you to throw up so much and to have an ng tube put down to your tummy every week! so tuesday you'll get a g-tube and a nissen (i figured out how to spell it-but the official word is fundoplication. yikes.) and they'll also do a pyloroplasty to make the opening from your stomach to your intestines bigger. this will help your stomach empty faster and hopefully it won't fill up so quickly that you need to throw up. i am so sad you have to have surgery again. daddy and i keep saying little comments about how much we hate that part but then we just remind ourselves how much easier life will be for all 3 of us after it's all done. so we'll be back in charlottesville for a week. we can do this.
i love you baby-
mommy
Downsizing Update: Almost 5 Years Later
2 days ago
10 comments:
hi, i still read every post, i just havent been the best at responding. we keep Catherine in our thoughts and prayers. im so sorry to hear she will need another surgery, but i know this surgery will help her in soooo many ways. Zach had his gtube surgery, no nissen or the pylor... at 5.5mnths. i was a wreck prior but he did great, and Catherine is another Fighter, so she will do wonderful.
i wanted to also let you know about your last post, about the "blues" from what i hear with lots of other CDH/nicu moms its completely normal, i know that i had a terrible case of them and actually ended up needing a lil help with some meds. just think how your life has been turned upside down....its normal. i think your doing fantastic, you can "feel" the love in your every word to Catherine. Dont stress too much over your saddness.....if it gets to be to much, try to see a doctor, no shame in it, no one who knows anything about your life the last year would say anything negative about it. anytime you want/need to talk you can email me roses4me777@yahoo.com and Zach's carepage is Zacharydavis .
keeping you all in our thoughts and prayers!
God Bless!!
Praying for you.
YES, you and donnie and catherinre CAN do this and wil do this and things will be so much better. You may not be able to see that now but with the big picture and long run it is ALL worth it for everyone involved, specia;lly little miss catherine. i love you guys as always and will be praying for a postive outcome/update.
Hi Katie,
I'm sorry to hear that Catherine has to have surgery again. Hopefully the g-tube will relieve some of the other problems and give Miss Catherine more ways to be expressive & develop without the yucky NG tube. She is such a beautiful little girl! As for the "blues", I think it's all quite normal, and with what you've been through, even expected! Just remember to take time for you to refuel your own "tank" too! My kids are nearly grown, and I STILL have days that tears come easier than smiles. It's not an easy job this being a mommy thing, but it is so worthwhile and amazing! Keeping you close in thought and prayer!
Hang in there guys!!
we'll be saying extra prayers on Tuesday...love you guys!
Katie,
I'm sorry that Catherine is going to have to undergo another surgery and we'll be thinking of all of you on Tuesday. Carter's docs keep mentioning the "G" word, and I just can't get over the thought of him having yet another surgery. It's like, when does it stop??
I can completely relate to your blues. I think that the 4 months Carter and Catherine were in the hospital, we had so much adrenaline running through us that it kept us going and life wasn't supposed to be normal. Now that I'm home, I get really upset when I think about how we're still not "normal" and how much the doctors and therapists still control our lives. And then, when I take Carter in public and people stare at his NG tube like he's some alien, I want to scream! If you ever want to scream and yell, just let me know :) kzmyers@yahoo.com
Take care and try to get some time out of the house and away from it all. Even if it's just a walk around the block.
Wish we were closer to y'all! We miss you, and are thinking about you.
We will certainly pray on Tuesday over sweet Catherine. God will continue to be faithful.
I saw Catherine's grandparents today and I also got to see Jackson... He's TOO CUTE!! You were right! = )
Our joseph had a gtube for several months--- ( he had TEF/EA at birth ). He came home from NICU with the g-tube. It wasnt bad at all....now he is all better-- and is a "normal" 21 month old twin. Hang in there-- it will all be a memory with another small scar ( we have several scars on our precious Joseph) , and enjoy the simple things now! She is so beautiful! I still follow you guys...praying for tuesday.
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